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AEC 2022

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Oct 19 / Roche and Genentech
Integrating the person living with Alzheimer’s disease (AD) and care partner perspective into AD clinical trial development
The Clinical Trials Guidebook was developed from an early partnership with the AD community, with the objective to gather insights into clinical trial participation and provides a resource that can be utilised mutually by the AD community and industry when planning clinical trials in AD and beyond. This presentation outlines the need for the Clinical Trials Guidebook, how it was created, what it includes and how it will help the AD community.

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Oct 18 / Roche and Genentech
Awareness of diagnosis from the perspective of people living with early-stage Alzheimer's disease
People aware of their diagnosis using the term AD were younger, had more depressive symptoms, and poorer life satisfaction and quality of life compared to those without awareness of their specific diagnosis. Awareness of diagnosis was a common phenomenon in people with early AD negatively impacting their well-being and quality of life. Identifying and understanding persons’ representations of AD from the onset of the disease may be essential for early implementation of individualized interventions to enable well-being and maintenance of independence where possible.
11:30 AM
Duration 15mins Salon A
Awareness of diagnosis from the perspective of people living with early-stage Alzheimer's disease
García-Arcelay E, Piñol-Ripoll G, del Olmo-Rodríguez A,Viñuela F, Boada M, Maurino J, Villarejo-Galende A

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10:45 AM
Duration 15mins Salon A
Integrating the person living with Alzheimer’s disease (AD) and care partner perspective into AD clinical trial development
Croney R, Georges J, Proulx L, Roeser J

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